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Rapidly growing fibroids
7 Replies
Surie - January 29

Hi, I am 45 and was diagnosed with fibroids in December last year. I have never had any problems up until a 24-day bleed, which prompted a visit to the gyno.

Yesterday, I had an ultrasound to check on them . . . my uterus has grown from 8 cm to 15 cm. --the fibroid is the size of an orange, he tells me. AND, I need a hysterectomy. My doctor is a bit concerned about the rapid growth of the fibroid. However, he said though I need a hysterectomy, he is not worried about it being other than a fibroid. Me, in my freaked out state, asked "worst case scenario," which is myosarcoma. Doc. says it is super rare, only about 1 in 1000 have it, but it's serious stuff that can only be confirmed by pathology after hysterectomy. HAS ANYONE EXPERIENCED SUCH A RAPIDLY GROWING FIBROID? I am terrified.


Sabina - January 29

It's hard not to jump to worst case scenario thoughts, isn't it? But, since it's such a rare occurrence, we have to think positively that you won't have it.

When is your surgery schedule for? It will be better if you get a second opinion. Just to be sure.


Cressida - January 29

Wow, that is pretty scary. With the fibroid growing so fast, sounds like your doc is on the right track though a second opinion never hurts. I don't have any experience with fibroids but I hope someone can help you with that.

It is hard to not go to worst case scenario. Really, is worrying about it going to help? Deal with it when the time comes but until then, take one step at a time. Try not overwhelm yourself, okay?


Tori - January 29

Fibroids tend to grow rapidly right before menopause. There is no correlation between rapid growth and cancer. Get a second opinion. You don't need a hysterectomy unless you want one. My fibroid grew from the size of a golf ball to the over 2 pounds in less than a year. I had it taken out and was as good as new.

Check out the National Uterine Fibroids Foundation website, they are a great resource.


Jordaine - January 29

I have two small fibroids in my uterus. They have never grown. Since I have had them I have experienced some irregular bleeding, but that has cleared up. I can't have them removed because they are two small to warrent an operation and if they were simply removed they would most likely grow back.

With your case, from my experience with friends with the same kind of issue they do a hysterectomy because these kinds of fibroids do grow back and the risk of complications is greater. They feed off our hormones. There are some newer surgical techniques to stop the blood flow to the fibroid and then it shrinks and disappears, but in most cases with rapidly growing and the size you are talking about docs go with a hysterectomy. You may want to ask your doc about your hormone levels. Sometimes with this problem a woman can have unusual hormone levels.

I wish you the best and do get a second opinion and go with whatever treatment option makes you the most comfortable.


Sally - April 13

There are several ways to treat fibroids. Have you heard of fibroid embolization? That is one way to treat fibroid.


kc - April 14

Several new procedures offer alternatives to hysterectomy or myomectomy, especially for the removal of smaller fibroids. An advantage of these new procedures is that they do not involve abdominal surgery. They may be performed on an outpatient basis, or they may require only an overnight hospital stay.


olgaielle92 - October 16

I am having the same problem with bleeding.I have history of ovarian cyst.I really don't know what to do. I am so scared and it is not fun when you can't be intimate with your husband because you are bleeding all the time.



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